Menilai Kualitas Hidup Anak Penyandang Hemofilia
DOI:
https://doi.org/10.55175/cdk.v47i6.632Keywords:
Anak, hemofilia, kualitas hidupAbstract
Hemofilia merupakan penyakit kongenital defisiensi faktor koagulasi dengan manifestasi perdarahan. Hemofilia dapat mengganggu kualitas hidup fisik, sosial, sekolah, dan emosi penyandangnya; anak dengan hemofilia memiliki persepsi diri yang lebih rendah dibandingkan anak yang sehat. Salah satu instrumen untuk menilai kualitas hidup anak adalah pediatric quality of life questionnaire/PedsQL; penggunaannya di kalangan penyandang hemofilia anak dapat menunjang tatalaksana.
Hemophilia is a congenital coagulation deficiency associated with bleeding manifestation. Hemophilia can affect physical, social, school and emotional quality of life; children with hemophilia can have lower self perception compared to healthy children. Pediatric quality of questionnaire/PedsQL is an instrument for assessment of quality of life in children; its use among children with hemophilia can improve management of haemophilia.
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